V.I.P.

Which stand for Very Important Posts.

This blog has become much bigger than I’d ever imagined, so I thought it might be a good idea to place some of my more informative posts on one page so that new visitors to the blog don’t have to fight to find them.


Information for Doctors

An excellent Toolkit for GPs/Primary care is available on the British Royal College of Physicians website.  Although primarily covering Ehlers-Danlos Syndrome it also has sections on Mast Cell Activation Syndrome and POTS.


My Personal Journey

M.E.:
History and diagnosis
How I made a partial recovery
My Cognitive Dysfunction
My battle with Insomnia

Ehlers-Danlos:
History and diagnosis
My stretchy skin: including photos
My hand issues: including photos
My eye issues
The Splints & Braces I use for my joints
Dealing with a pain flare (or just pain in general!)

Histamine Intolerance & Mast Cell Activation Disorder:
History
Diagnosis part 1 (NHS)
Diagnosis part 2 (private)
Diagnosis part 3 (private)
My drug Reactions
Other Reactions & Anaphylaxis
Post Reaction Stress Disorder: why I will never try anything you suggest, even if it’s helped you!
Dermographism
My chronic MCAD symptoms & triggers

General:
Test Results
Is it curable?:  my thoughts on the prognosis for my 3 diseases.
Have you tried….?: some of the drugs, supplements and therapies I’ve tried over the years.
‘Psychiatric’ Symptoms
Gastrointestinal Symptoms


Food

The Truth About Food Lists: my thoughts on the accuracy of low histamine food lists.

To Eat or Not to Eat: how I decided which controversial foods to eat, or not to eat.

Is Wheat the Devil?: the demonization of the humble wheat grain.

Anti-inflammatory diets: are they all they’re made out to be?

It’s food, but not as we know it: what’s really in the food we eat?

Luteolin & Quercetin: table of the foods highest in these anti-histamine flavanoids

S.A.D (Standard American Diet): my previous diet is not why I’m sick!


Mast Cell Disease

“Do I have a histamine problem?”: this post outlines my answer to a common question asked by my readers.

Dr Seneviratne Lecture 2015: brief summary

The Canary: a rather technical research post on mast cells and how they might be implicated in Myalgic Encephalomyelitis.

The Canary Q&A: some follow-up questions on mast cells and their role in M.E.

2017: What I’ve learned so far


Histamine Intolerance

HIT: Info from Dr Joneja

HIT: DAO & Peashoots


Ehlers-Danlos Syndrome

The Bladder & GI Tract

Multi-faceted EDS: the stretchy bits that don’t appear in textbooks.

Hormones & EDS: how puberty & menopause can affect EDS

Proprioception: why we tend to be clumsy!

Eye Problems & EDS


M.E.

Chronic Fatigue is not M.E.

My Immune System & M.E.

Exercise & M.E.

Living With ME: a very real, beautifully written and descriptive post written by a fellow ME sufferer.


Relationships

Love: the impact my illnesses have had on my romantic life.

Friendship: finding, keeping and losing friends when you’re sick.

Love & Loss


Miscellaneous

M.E. v EDS v POTS: the similarities, and differences, between the diseases from which I suffer and their overlap with mast cell disease.

Spirituality: this, for some reason, has been one of my most popular posts – I’ve no idea why because it’s basically just me ranting and not being in any way spiritual 😉

Thoughts on Suicide: I am honest in this post about this issue, so please don’t read if you think you will find the topic upsetting or it goes against your religious beliefs.

Show me the real you:  how should the public treat us when we wear a mask to the world?

The Reality of Chronic Illness

Methylation/MTHRF

Life is Messy: we don’t all “beat” our diseases which doesn’t mean we’ve flunked as a sick person!

10 things not to say to this sick person!

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2 thoughts on “V.I.P.

  1. Amanda

    Hi. Reading your blog (in part) has so many similarities to my situation. In brief. I have been off work since 2015, diagnosed initially witg Fibro then 6 months later ME/cfs. POTS and ibs. Oral allergy syndrome. I had a histamine prick test done because I have random allergies and symptoms. Dr said it was negative, despite having an instant wheal appear. I also had a physical reaction , like I had been anethetisd during test. He said it couldn’t have been related to the test. I’m not sure. I have wondered about mcas based on this and other random allergies and reactions.
    Within the last month, after fighting for a laproscopy, (initial private consultant at last resort) I was diagnosed with Endometreosis which they lazered. Also part of my bowel attached to my abdominal wall.
    I’m not sure my GP will refer me to the speciaist you saw. It sounds like it’s worth trying private again. I’d love to chat if you have energy to email.

    Like

    Reply
    1. Jak Post author

      Hi Amanda

      Sorry for the late reply. Gosh, you’ve really been through the ringer 😦 Your story will sadly be familiar to many people with mast cell issues.

      I’m so sorry but I don’t have the time or energy to email people privately 😦 I have over 400 visitors to my site every day and simply wouldn’t be able to cope. If you have any questions though feel free to leave them in the comments box on any of my blog posts (though don’t put any personal information as the comments can be read by anyone).

      Dr Seneviratne only sees private patients for mast cell issues, he’s not funded to treat people with MCAD on the NHS unfortunately. There is one NHS consultant though who sees possible mast cell patients but of course this would need a referal from your GP. Details for both doctors under the menu header ‘Resources & Links/diagnostic services’.

      Jak x

      Like

      Reply

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