Tag Archives: skin

Dermographism

Also known as Dermatographic urticaria, Dermatographism, Dermographia or Dermatographia and commonly called “skin writing”.

I’ve had Dermographism for as long as I can remember.  So I was either born with it (most likely) or developed it in infancy.  I had absolutely no idea that other people didn’t have it until I was 45 years old because it had always been normal for me.  How crazy is that?

According to Wikipedia: Dermographism is “thought to be caused by mast cells in the surface of the skin releasing histamines without the presence of antigens, due to the presence of a weak membrane surrounding the mast cells. The histamines released cause the skin to swell in the affected areas.  This weak membrane easily and rapidly breaks down under physical pressure causing an allergic-like reaction, in general a red weal (welt) to appear on the skin. It can often be confused with an allergic reaction to the object causing the scratch, when in fact it is the act of being scratched that causes a weal to appear. These weals are a subset of urticaria (hives) that appear within minutes, in some cases accompanied by itching. The first outbreak of urticaria can lead to others on body parts not directly stimulated, scraped, or scratched. In a normal case, the swelling will decrease with no treatment within 15–30 minutes, but, in extreme cases, itchy red welts may last anywhere from a few hours to days.”

I couldn’t have put it better myself 😉

I develop dermographism when I’m scratched, or sometimes when my skin is subjected to pressure.  I cope with pressure better than scratching and can wear elasticated clothing and socks without problems, so long as they’re not too tight.  My biggest issue in respect of pressure are the braces I use for my joints.  They have to be tight in order to support the joint but on the whole they’re simply too tight for my mast cells and cause welts to develop.  The welts itch me like a son-of-a-bitch and of course if I scratch the scratch itself becomes a welt.  Joint braces = histamine hell.

Scratches on my skin cause my dermographism to go bonkers but, unlike the welts caused by pressure, these welts don’t itch.  It’s bizarre.  I thought I’d demonstrate my dermographism by scratching the word “hi” on my arm with the end of a pen.  Here’s the instantaneous result:

Photo of Dermographism on the armI’ve never timed how long it took for the hives to go down, so as an experiment here’s the dermographism after 2 hours:

Photo of dermographism on the armAnd again after 4 hours:

Photo of dermographism on the armAfter 7 hours the swelling had gone but the red mark of the word “hi” was still there when I went to bed that night (though had gone by the next morning).  As I said though, no itching and luckily the hives are always contained to the area of the scratch and don’t seem to set off any kind of histamine chain-reaction elsewhere, yayyy!

My dermographism isn’t confined to pressure and scratching though.  When I had a 24 hour heart monitor done in 2014 I had to wear pads stuck on my skin with electrodes attached to them.  My skin can be iffy when it comes to glue (some plasters and tapes make me itch like mad) and this was the reaction to one of the pads on my chest:

Photo of dermographismThe itching nearly drove me to distraction and, not only was there an oval shaped hive from the pad, but weird criss-cross hives all the way round it too – no clue what they were, but oh boy was I glad to get those damned things off me!

I don’t take any kind of medication for my dermographism.  I scrape my skin 10 times a day (being thin-skinned due to EDS) but luckily the scratches don’t itch so I feel no need to treat them with anything.  It would be great to be able to wear proper joint braces but, as I’m allergic to anti-histamines, taking daily medication to counter-act the pressure hives isn’t really an option.  So I just don’t wear anything tight – problem solved 🙂

I wish I’d known a very, very long time ago that dermographism is an indicator of Mast Cell Disease.  Mine is classed as fairly severe and unusual that it presented from early child-hood.  Obviously as MCAD is now linked to Ehlers-Danlos Syndrome and EDS is present from birth I personally feel my MCAD has also been present from birth and simply worsened in middle age as did my EDS – it’s no coincidence that my MCAD exploded less than 2 years after my EDS exploded.  Other people, however, acquire dermographism in later life and of course not all people with dermographism have EDS.

I wish I’d known as a kid that my skin wasn’t like everyone else’s.  I could have added Skin Etch-a-sketch to my list of party tricks and I’m sure when I was 9 that would have been super cool.  Not so cool though to have thong induced hives up the crack in my arse.  Who the hell invented thongs anyway – they’re like dental floss for your butt! 😉

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Bits n Bobs

There’s nothing like starting off a Blog post with an informative, clever and witty title……..or not as the case may be ;-).

I’ve added a new page to the site on My Symptoms so that you can compare yours to mine (you wouldn’t think it was physically possible to have this much wrong with you yet still look like a totally normal functioning human being, some of time at least).  I actually found this page quite hard to write.  I’ve been ill now since 1994 and have had so many symptoms over the past 20 years it’s hard to remember them all, especially as some of them have, for the most part, gone and only come back when I have a relapse (which, thank God, is rare these days).  It’s also been so long since I was healthy I just accept my broken body, and forget that the myriad of symptoms I cope with every day of my life really isn’t normal.  So I’ve no doubt forgotten some issues that are quite important and will keep going back to the page and adding as I remember (I sooooo miss having a properly functioning brain)!

I also forgot to add my ‘dirty elbows’ to my Skin post so have updated that.  Does anyone else have ‘dirty elbows’?  I have no clue what this pigmentation is all about, or why it’s just on my elbows and no-where else!  The skin isn’t dry or hard or rough, just brown for absolutely no reason.  I’m sure it’s nothing at all to worry about (not that I do, worry I mean) but it does look like I can’t be bothered to bathe (which, if I’m honest, I can’t most of the time – it’s exhausting – but that’s not a fact I’d like my elbows to advertise to the entire globe!).

And speaking of skin, I have large chunks of it missing now that summer has (finally!) arrived here in the UK.  I made the fatal mistake of wearing flipflops (which resulted in the skin between my toes being rubbed clean away) and a pair of trainers without socks (which resulted in blisters the size of coins on both my little toes).  Having ‘delicate skin’ sounds feminine and romantic but in practice is a bloody nuisance.  Plus, you can’t wear orthotic insoles with summer shoes, so of course I went over on my ankle several times which is now swollen and a lovely shade of greeny purple.   Someone on the EDS forum posted a link about sandals which contain custom built-in orthotics.  They look just the job, so I’m making an appointment with my Podiatrist to see if I can get a copy of my prescription to have some summer shoes made.  Honestly, this being ill malarkey is soooo expensive and all at a time when you’re skint-a-roony because you’re unable to work as you’re ill :-/

The excitement for the week was receiving my DNA testing kit from America.  The hypermobile type of Ehlers-Danlos Syndrome is the only type for which a gene hasn’t been identified, so a group of patients on the Inspire EDS forum have decided to have their genes tested at their own expense and to pool the results to see if they can come up with any patterns.  I decided to take part (costs about £116 including shipping) as the test provides a mind-blowing array of information including your ancestry (ie African, European, Asian), how Neanderthal you are (probably 90%, the other 10% being ape 😉 ), how well you metabolize drugs (this will be very interesting considering I can’t take drugs of any description), which diseases you genetically carry (I’m looking specifically for Dupuytrens Contracture, Osteoporosis and Essential Tremor as my Mum has all three) and which diseases you are at risk of contracting.  I now have to wait about 2 months for the results (the suspense will kill me because I’m really not the most patient patient in the world!).