I was getting fed up of waiting for the results of the pelvic MRI I had 6 weeks ago, but yesterday a short letter arrived in the post. It stated the scan showed “probable endometriosis and adenomyosis” (read about both here) and I now have an appointment on 8th June to discuss. There was no mention of fibroids, so I’m now not sure if what looked like fibroids on the Ultrasound was really adonomyosis or whether I have both. They did find a plum sized pendunculated fibroid (ie one that sits on the outside of the womb) on Ultrasound, but this again wasn’t mentioned in the MRI results letter and I don’t know why. It’s all a bit confusing.
The fact they’ve found endometriosis comes as absolutely no surprise. I’ve had the classic symptoms of endo since I was in my late teens. Why it wasn’t picked up on the MRI scan I had at my local hospital in November though remains a mystery – everything my local hospital does is a mystery! The reason I chose to go to the RVI in Newcastle is that it’s a centre of excellence for endometriosis and I knew beyond doubt they’d find endo when they opened me up.
I’d never heard of adenomyosis but having Googled it all makes sense. I have every one of the symptoms and it explains my excruciating period pain all these decades. The only real cure for adeno is a hysterectomy – bring it on, I can’t wait.
So, it looks like I have virtually every pelvic disease known to man: fibroids, endo, adeno and polysistic ovaries. Yayy for me! As it’s all been left for 30 years I dread to think what my pelvis will look like when they cut me open. Seriously, with exploding chocolate cysts ontop of everything else I bet everything is stuck together and there are adhesions for England. It’s not going to be pretty.
I feel like I’m finally in good hands though and I’ll let you know what the Gynae says in June.