I can’t believe it’s Sunday again already – I feel like I’ve achieved diddly squat this week. I’ve had 3 bad migraine days, 3 disturbed nights due to hip pain and my energy levels have been super low, consequently I seem to’ve spent a lot of my time in bed being as bored as a bored person on a boring train to Boredsville.
I discovered this week that 2 of my friends are suffering from Long Covid, once since he had a mild Covid infection in March. Most people who develop M.E. (though not all) do so following a viral infection of some kind and the similarities between Long Covid and M.E. are striking. In fact, some people who were infected with Covid in March have now reached the 6 month threshold for a diagnosis of M.E. and some doctors are calling these patients Long Covid M.E.
The difference between how myself and my friends were treated as M.E. patients, and the way Long Covid patients are being treated, however is staggering. I had very severe M.E. symptoms, including seizures, paralysis, loss of speech and had obvious neurological defects like a loping gait yet it took 2 years for me to be offered an MRI scan and I was treated with huge derision while in hospital for that, while my friend who’s only had mild symptoms since March has already had both an MRI scan and a CT scan and is being regularly monitored by his doctor. It’s hard not to feel angry, but my hope is that the attention being given to Long Covid patients will benefit people with M.E. in the long run.
I had to take my Mum to see her GP on Friday. Her ankles had been swelling badly, so she had been advised to increase her existing water tablet but this caused her kidney function to decline alarmingly, so she had to have it re-tested . Plus she had a large lump under her arm with some kind of icky crust on it and the GP needed to examine that in person. It turned out just to be a massive comedone which the doctor was able to squeeze to her great delight 😆.
Bertie’s recent severe back pain seems to finally be settling and I’ve been able to reduce his gabapentin from 3 per day back down to his usual 1. I think the drug was making him sleepy because he’s been super perky since the dose was reduced – it’s great that he’s still so lively at the ripe old age of 12.
The nicest part of my week was meeting my bestie for a car picnic. Although she is really strict about self-isolating her partner goes out to work, so we are aware there is a risk he could unknowingly bring home the virus and we avoid meeting up in each other’s houses. We pulled up in a lay-by near some woods and chatted to each other through open windows while munching on butties and drinking tea from a flask, which was a bit cold and uncomfortable but still lovely 🙂.
Well gorgeous people I desperately need to pee (I know, TMI!) then am off to put the grill on for some toast, which will no doubt be the highlight of an otherwise very boring day as my energy is still on holiday, no doubt sipping cocktails on a beach in the Bahamas the jammy git! Until next week, stay safe x