This is just a quick post to say that an excellent, comprehensive and easy to understand toolkit on Ehlers-Danlos Syndrome aimed at primary care/GPs is available on the British Royal College of Physicians website. Not only does it cover hEDS in detail it also has excellent information on MCAS and POTS in the ‘Emerging Major Associations’ section – hurrrrah! Maybe now we might start to find Doctors in the UK who have at least heard of these three disorders and the more people who are diagnosed the less “rare” they will all become. Because we know they’re not rare don’t we?!
It’s been interesting reading through all the info and I’m definitely sending the website link to the Eye Consultant I saw at the hospital this week and my GP just in case she hasn’t got the memo.