I have news about my Dad. As regular readers will know, 2 years ago he started having weak legs and to cut a very long story short he went from walking miles up the fells every week to needing a wheelchair. We discovered he had severe sensorimotor polyneuropathy but the Doctors couldn’t find a cause. We were all baffled. At our last meeting with the neurologist my Dad flippantly mentioned that he had a very dry mouth. We’d told his GP but he’s on prostate medication, the side effect of which is a dry mouth, so it was put down to that however it can also be a symptom of the auto-immune disease Sjogren’s Syndrome. SS, if left untreated, can cause neuropathy so in a last-ditch attempt the Neurologist ordered a lip biopsy which was done last month. And low and behold it has come back positive for SS! 90% of SS patients are women (although it begs the question if men simply go undiagnosed) but men who get SS do tend to have a more severe form of the disease. Not only can SS affect the nervous system it can also affect the brain, causing memory loss and confusion. My Dad was diagnosed with mild dementia 2 years ago, so now I’m wondering how much of his cognitive symptoms could possibly be SS related. We have been referred to a Rheumatologist at our local hospital and are just waiting for an appointment. I’m so chuffed a reason for his neuropathy has been found – knowing what’s wrong with you is half the battle as we all know.
I was feet away from being blown to Kingdom Come this week. Our summer so far in the UK has been a total washout bar one mini heatwave, and the north of England is suffering flooding. We have had some wicked thunder storms and during one such event this week lightning struck the road right outside my house 😮 The bang was so loud I thought a bomb had gone off and I genuinely expected to look outside and see something on fire. Luckily nothing big was hit, though mine and 3 of my neighbour’s wifi routers stopped working. Mine eventually came back on, but my neighbours’ routers all blew so they are having to have them replaced. One neighbour has also lost his Freeview TV signal so it must have blown the cable or something. To add insult to injury, two hours later the UK was subject to a mass power outage and all the electric went off, just as we were all cooking our suppers. It was not a good day.
In between all that, I have had my house valued. I had no idea Estate Agents were going to charge nearly £3000 to sell my property, so am considering going with Purple Bricks instead and selling it independently. I have a couple of questions I need answers to first, though, before I decide. I went for a 2nd viewing on the bungalow and discovered it is more poorly than I’d originally realized. The annexe I would use as a photography studio is coming away from the garage it’s built on to, there is damp on the lounge walls and ceiling, and the floors and ceilings in the main house are all sloping I think my next step is to pay for a structural survey before I can decide what level of offer to put forward, the money for which I might lose if I don’t end up purchasing the property. Having to have the concrete floors dug up and re-laid is a massive, expensive, noisy and dirty job and I would probably have to move out for a week while it was being done, however it is purely because the house needs this level of work that I can even begin to afford it.
I am currently on day 40 of my cycle. I have constant lower back ache and niggly period pains, plus god-awful heartburn (which I often get just before my period as my connective tissue become extra lax), but my period is awol. For the first time I am also really noticing heat. I’m not having hot flushes or sweating, I just feel boiling hot all over and despite the fact it’s currently 11C outside the thought of wearing anything other than shorts and a cami top is suffocating. I let Bertie sleep under the duvet last night as I had the ceiling fan on full pelt – he lay there shivering but I was still on fire 😉 I also have a constant ravenous appetite, speaking of which I’m in need of some breakfast – I shall refrain from having ice cream being as though it’s only 7.30am but I can’t guarantee I’ll go the whole day without a scoop or two of salted caramel freshly made with milk from Jersey cows on the farm up the road. I tell myself the salt is good for my low blood pressure and the protein and B12 in the milk is vital to my vegetarian diet. Looking at it like that it’s positively a health food 😀