I finally received a letter on Thursday saying my scan is booked for tomorrow (Monday). They legally have 14 days from referral to see suspected cancer patients and it’s exactly 14 days! I did try to ring my GP to let her know about the new elbow lump I found, but after 4 attempts (three times being put on hold forever and the fourth being hung up on when I finally did get through) I gave up and dropped a written note in to her instead! I’ll definitely mention the lump to the scanning person though.
I think my Mum is freaking out a bit about the situation. When I told her about the second lump her first words were “if anything happens to you you’ll have to tell us what you want done with the dog!” Er, thanks ma – I’m not dead yet y’know!
I tried Googling mast cell activation disorder and swollen lymph nodes and came up with nothing. However, it is found in systemic mastocytosis so hopefully the swellings will turn out to be benign and if that’s the case I’m asking to see a consultant who knows about mast cell diseases. I haven’t seen anyone since my diagnosis 5 years ago and just because a disease is rare doesn’t mean you should receive no medical care whatsoever.
On Tuesday I, yet again, chased up my Dad’s CT scan results only to be told, yet again, they’re not back yet – it will be 6 weeks on Tuesday. My family are all totally pissed off with the situation now, so decided to pay to see a neurologist privately. I chose one who also works for the NHS at the RVI so that he would have access to my Dad’s NHS notes and test results, and rang up for an appointment. The Nuffield website says that if you self pay you get to see a Consultant within 24 hours. Lying little fuckers. The first appontment we could get is on 9th April!! So I’ve booked it, but we might have heard back from the RVI by then. I was so angry that I put in a complaint to the Advertising Standards Authority about the misleading nature of the Nuffield website.
The Gods took pity on me for once, and to counteract all the doom and gloom I found out at the start of the week that my image of a Child Bride had won a gold medal in an international salon in Belgium. Not only that but it was also awarded a medal for best colour print of the entire exhibition and was placed on the cover of the catalogue 🙂 In the same Salon, my Evacuee photo was also highly commended and received a Photographic Society of America ribbon. I’m chuffed to little meatballs 🙂
I didn’t do much for most of the rest of the week because up until Thursday I was poleaxed by exhaustion. It’s just ‘normal’ exhaustion, as opposed to the fluey, weak, poisoned exhausted I get from a bad ME patch, so I suspect it’s just hormone/menopause related as it comes and goes and by the weekend I felt OK(ish) again.
To take my mind off everything I attempted another photo I’ve had in my mind for a while. It’s called ‘On The Shelf’ 😀
I had a nice day on Saturday. My neighbour turned 80 and her son had arranged an afternoon tea party at a lovely hotel up the lakes for her friends and family. My parents, and Bertie (who my neighbours ruin), were also invited and it was a nice opportunity for all of us to get out of the house and do something different.
This morning a friend has invited me for breakfast at a nearby cafe, so I’m going to take Bertie out for his morning constitutional then meet him for tea n toast. My friends have been really supportive since I found my lumps a fortnight ago, as have several of you my lovely readers, and I am grateful for all your messages and good wishes 🙂 I won’t find anything out tomorrow – it’s not like the scanner operator will tell me whether or not I have cancer – but as soon as my GP rings me with the results I’ll let you all know.