Links & Further Reading

Ehlers-Danlos Syndrome:

An excellent and easy to read write-up on HMS by Alan Pocinki M.D. from the Dynakids website.

Very good, easy to understand 2013 video presentation by Dr Francomano on the systemic nature of EDS.


Mast Cell Disease/Histamine:

Dr Afrin, a world leading doctor in MCAD, wrote an extensive paper in 2013 which is the best, and most comprehensive, on MCAD I’ve seen to date.  View the abstract here (scroll down the page and click on the PDF download button to see the entire 77 page document).  Please note that the document cannot be reproduced, stored online for retrieval or printed in any way.

Michael’s Mastocytosis website contains some excellent information on mast cells in an easy to read format.  Although specifically about Mastocytosis (Michael’s wife has the disease) there is also information on MCAD and mast cells in general, and quotes from some of the top experts in the world.  The website also contains a blog.

Lisa’s Mast Attack website contains a wealth of information on mast cell disease which is evidence based and backed by the most recent scientific research.  Lisa herself is a Scientist and has Systemic Mastocytosis.

A comprehensive medical write-up of Mast Cell Activation Disorder can be found on the National Center for Biotechnology Information website.

A good explanation of Mastocytosis and MCAD can be found on the Patient UK website.  This would be good to print out for medical professionals who don’t have any prior knowledge of these diseases.

An easy to read article on Histamine, biogenic amines and HIT can be found on the Diagnosis Diet website.

Click here for a good article about histamine and its role in our bodies from the Idiopathic Anaphylaxis Information Centre in the America.

Pretty by Diana Driscoll is an excellent resource for mast cell disease, although I personally would prefer written articles rather than videos.  Diana is on the cutting edge of mast cell treatment and research.



The excellent Cort Johnson has written a good post on M.E., EDS, POTS and Fibromyalgia (2013).


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