Links & Further Reading

Ehlers-Danlos Syndrome:

The 2017 International EDS Classification which includes an article on MCAD written by Dr Maitland and Dr Seneviratne.

An excellent Toolkit for GPs written in 2018 is available from the UK’s Royal College of Physicians website and includes a section on autonomic dysfunction and MCAS.

Very good, easy to understand 2013 video presentation by Dr Francomano on the systemic nature of EDS.


Mast Cell Disease/Histamine:

Dr Afrin, a world leading doctor in MCAD, wrote an extensive paper in 2013 which is the best, and most comprehensive, on MCAD I’ve seen to date.  View the abstract here (scroll down the page and click on the PDF download button to see the entire 77 page document).  Please note that the document cannot be reproduced, stored online for retrieval or printed in any way.

Lisa’s Mast Attack website contains a wealth of information on mast cell disease which is evidence based and backed by the most recent scientific research.  Lisa herself is a Scientist and has Systemic Mastocytosis.

A comprehensive medical write-up of Mast Cell Activation Disorder can be found on the National Center for Biotechnology Information website.

A good explanation of Mastocytosis and MCAD can be found on the Patient UK website.  This would be good to print out for medical professionals who don’t have any prior knowledge of these diseases.

An easy to read article on Histamine, biogenic amines and HIT can be found on the Diagnosis Diet website.

Click here for a good article about histamine and its role in our bodies from the Idiopathic Anaphylaxis Information Centre in the America.

Pretty by Diana Driscoll is an excellent resource for mast cell disease, although I personally would prefer written articles rather than videos.  Diana is on the cutting edge of mast cell treatment and research.



The excellent Cort Johnson has written a good post on M.E., EDS, POTS and Fibromyalgia (2013).

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