Weekly roundup

I’m going to start with some brilliant news for a change, after all the doom and gloom of recent weeks. I have been worried sick about how I will live in the world with Covid endemic in the population. I can’t risk having the vaccine after the last inoculation I had put me in bed for ten years, and even though other people will be having the vaccine they can still be carriers for Covid and infect me. However, this week a research group based in Canada announced they had developed a nasal spray which is 99.9% effective at killing Covid 😮.

The SaNOtize nasal spray provides a barrier within the nasal passages and upper airways. It contains nitric oxide which prevents and treats early infection by destroying the virus and impeding viral replication within the cells in the nose. In addition, nitric oxide has been shown to block the ACE-2 receptor essential for the virus to infect our cells. The UK are now conducting trials on the nasal spray and it is soon to be trialled in America. That we might be able to buy a simple nasal spray over the counter to combat Covid is freakin’ awesome though you’d still have to be super vigilant about keeping your hands sanitized.

It’s been another stupidly busy week. I’ve spent 8 hours putting together a case against TalkTalk, my parents’ telephone provider, in the small claims court. They haven’t had a properly working telephone line now since July 2020, which is putting their lives at risk as it’s their only contact with the outside world and more importantly the emergency services. In fact, when my Mum discovered my Dad bleeding at 2am following his hip replacement surgery and she rang the emergency services the phone line cut out twice. After complaining for months and getting nowhere, I opened a case with Arbitration who ruled against me in December claiming that because the engineers couldn’t find the fault it didn’t exist and I hadn’t proved there was one. Why-the-hell would I spend months of time and precious energy complaining about a fault if it didn’t exist, and how the fuck am I supposed to prove there’s a fault?! So now I’m having to take TalkTalk to Court. I don’t need the stress, but my parents absolutely need a working phone especially as they are disabled, my Mum is very poorly and we’re in lockdown.

My Mum has decided she wants 3 rooms in their apartment decorated and a new carpet put in her bedroom. I could strangle her for wanting to do this during a freakin’ lockdown, especially with strangers coming in to the house and potentially bringing the virus with them, and I’ve tried my best to talk her out of it but she is so depressed I think she just wants something to focus on. It’s not her who has it to organise though, as she’s not well enough, so I’ve had to arrange a decorator who is coming on Tuesday, new curtains, and a new carpet despite the fact the carpet shop is shut! I know, I’m awesome 😇. Yesterday I was there for hours getting the rooms ready, including boxing up all the ornaments, taking down pictures and blinds and wiping down all the paintwork, for which I duly suffered tortuous pain last night.

My Mum has been so down recently that I also arranged a little treat for her. I adorned her bedroom with candles, put on some soft music, lay her on the bed covered in a duvet and gave her a facial. She loved it and I didn’t mind doing it one bit. She’s been so ill recently she hasn’t been drinking, and she’s lovely when she’s sober. It’s only when she’s drunk she becomes a stranger I don’t recognize or like.

On Monday, I’m taking her to the city hospital for a CT scan and today she has to swallow 2 bottles of barium liquid. She also has to follow a clear, liquid only diet so I had to go to Sainsburys for some beef consommé, jelly and apple cordial as they are on her allowed list. Only, I forgot the bloody jelly so am having to drive 14 miles this morning to go and pick some up 😕.

I started on a good note, so I’m going to end on a good note. One of my images was chosen this week by the Photographic Alliance of Great Britain to represent the UK in the photographic world cup as part of a panel of images with the theme of ‘Creative Portraits’ 😮. My friend encouraged me to put forward some images for selection, even though I didn’t think they would be any where near up to standard. Just goes to show you should always have a go, even if you think your chances are slim to none! The print world cup takes place every other year and is being held in France. Results expected in April so I’ll let you know how we get on.

Right, it’s breakfast time then I’m off out with the dog before going to town to the supermarket. The sunrise is spectacular again this morning and as I type this the sky is streaked with a deep blush red. It’s sodding freezing though and the north of England is apparently due 20cm of snow mid week. I’m beyond exhausted and so ready for spring and the lockdown to end.

7 thoughts on “Weekly roundup

  1. Elaine Stammers

    Thank you for sharing the news about that nasal spray, Jak. I have been reading all over the place about Covid and the vaccines but somehow did not find this bit of info! I don’t have the bad experience you have had re vaccines, but I have not had one since I was 24, and now I have 2 autoimmune conditions, plus had a 3rd in pregnancy (which someone has recently died from post vaccine – thrombocytopenia), so what with that and a recent surge in odd symptoms post actually having had Covid-19, (am having to be rigorous now about reducing histamine in my diet which so far is helping), I am reading all I can, and reluctant to have the vaccine at least in the short term until there is more research re adverse incidents out there.

    I had intended replying to your last post but haven’t got to it yet (re how you have been feeling and coping with your extremely challenging life). I am in awe of how you have supported both your parents with ops and all the stuff of life, including re TalkTalk (I am with them too!) – what a blinking nightmare!

    I am so glad to hear that you have some good news to brighten your day, what with the nasal spray and the photographic exhibition. Wow what an honour to have even been chosen to represent the UK! Well done you!!

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  2. jen6girls

    Thank you once again for caring for your parents. It warms my heart…which I especially need lately.
    I’m so happy for you to be chosen for the exhibition, it’s very exciting. Looking forward to hearing more.
    Take care, Jen from California

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  3. d

    I’m not sure if there’s a way to send a message so I will post this here. This week I experienced a new onset allergy to amoxicillin (fun, fun, fun!). In my internet review on medications and MCAS, I came across this document, which might be handy for some if you have to go to emergency (I didn’t thankfully, the benadryl helped control my symptoms): https://tmsforacure.org/wp-content/uploads/2016-TMS-ER-Protocol-Pages-2.pdf

    I was also recently looking for information about whether individuals with MCAS are more likely to have a severe course of COVID should they contract it. I didn’t find much, but I did find this post by Dr. Lawrence Afrin about medications and things for practitioners to be aware of: https://www.drtaniadempsey.com/post/mast-cell-activation-syndrome-mcas-covid-19-coronavirus

    Finally, you’ve probably heard that some physicians are now seeing links between post-COVID syndrome (the long haulers) and MCAS: https://www.annallergy.org/article/S1081-1206(20)31165-0/fulltext

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    1. Jak Post author

      Thanks so much for this info d 🙂. There’s lots of info in the UK about the similarities between long covid and M.E. and the ME Association here has been liaising with the government on managing long covid symptoms.

      As I think M.E. is a form of MCAS it’s no surprise to see links are being made between long covid and MCAS!

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