For the past decade whenever I have blood tests and my kidney function is checked it is found to be abnormal. Adults of my age should have a GFR of >90 and mine is consistently in the 70s – I am therefore classed as having stage II chronic kidney disease. Despite that, my GP never mentions the abnormal result. When I’ve picked her up on that she just says “oh, it doesn’t mean anything – you were probably dehydrated the day you had the test done”. What, every time?!
As I said in a recent post, I’ve just had an email off a friend who has ME and strongly suspected MCAD and hEDs. She’s just had her kidney results back and they are also abnormal.
Someone on the ME Association’s Facebook page recently asked a question about peeing. She said she wees for England and is that normal in ME? Well, from my experience “yes”! I pee constantly, sometimes going 3 times in an hour, and I don’t mean I do a little trickle – I mean I PEE. Like a race horse. I have no idea where all the fluid comes from. My concern is that I have piddled so much in the last 20 years I am literally exhausting my kidneys and one of these days they will lie down with their tongue hanging out and die like an overworked donkey.
Before going on a low histamine diet my peeing was out of control. I often got up 6 times in the night to urinate and during the day was never off the loo. There was/is no pain involved, I just peed and peed and peed. After going low histamine, however, this improved substantially and now I only wee in the night if my histamine bucket is high. But I do still wee much more than your average human.
When you have hEDS you can definitely get urine retention and it’s easy not to empty an overly-stretchy bladder properly, but that still doesn’t explain the sheer volume of widdle.
These days, if we have a symptom like this we would expect to go on Google and find out the cause, only of course no-one looks at this stuff when it comes to ME (they’re too busy concentrating on ‘fatigue’) and research into MCAD and hEDS is still so scarce that nothing much pops up. It’s definitely something I’ll discuss with the MCAD doctor if/when I get to see him.