Weekly roundup

Everything I do has to be paid for and, as expected, last Sunday’s day in Lancashire took its toll and I spent Tuesday crippled by a banging, sickening migraine which lasted til Thursday.  Yay.  To add insult to injury my parents haven’t even got me a ‘well done’ card for passing my distinction let alone a bunch of flowers which, if I’m honest, is kinda hurtful especially when they did both for my niece recently when she passed her police exam.  It’s almost as if, because I’m ill, nothing I achieve means anything and isn’t real despite the fact that, because I’m ill, it’s twice the achievement it would be if I were healthy!  At least some of my Camera  Club buddies are happy for me and took me out for a little celebratory lunch on Friday.

Friday night I slept for 8 whole hours and only woke once.  No big deal you might think, except the fact it’s virtually unheard of in my house.  Before I got ME I never had trouble sleeping, but once of the first symptoms of the disease for me was insomnia and I have struggled to sleep for nearly a quarter of a century.  When I started my low histamine diet it definitely helped my sleep situation, but then along came peri-menopause and it all turned to crap again.  And just recently my awful back pain has made the situation ten times worse and sleeping in my house is like catching fog.

I am bone weary and at the moment can barely keep my eyes open past 9pm.  However, no matter how shattered I am I still only sleep for about 5 hours and during that time I’m awake at least 2 or 3 times, often having to get up to pee in the early hours.  Friday night I was particularly shattered and absolutely desperate for sleep, but as I lay in bed watching TV with my back killing me I knew that yet again it wasn’t going to happen.  In desperation I tried every trick I knew to get my back to settle down – having a warm bath, slathering myself with Ibuprofen gel, putting on my TENS machine even though you aren’t supposed to sleep with one on, and wearing both my SI belt and my back brace, despite the fact it squishes my intestines.  I was probably the most comfortable I’d been in ages and, amazingly, actually nodded off watching tv at about 8.30pm, something I hardly ever do.  I was startled awake at 11.45pm by the telly blaring, so got up for a wee but went straight back to sleep and the next thing I knew it was 5.30am.  Whoo-hooo!!   I mentally felt like a different person Saturday morning.  Last night was business as usual though and this morning I feel like I’ve been dragged through a  hedge backwards :-/

I woke up Saturday morning with my wrist swollen, red and itching like a bitch.  No clue why and I’m just  putting it down to one of those mast cell things.  My arse is covered in hives and has been for a month now so my histamine is obviously pretty high.

Yesterday was the 1st of December, so Bertie opened door number one on his doggie advent calendar and ate the carob chocolate inside and I put my Christmas tree up so the lounge is now all sparkly with lights.  I find Xmas difficult being on my own and sick, but I still make the effort to put up decorations even though I never have any visitors.  *I* see them and that’s all that matters.

Today I’m going in to town to put my parents’ decorations and tree up even though it’s the last thing on earth I want to be doing.

This week is another big week.  I am off to London on Friday to the Gallery opening where my photograph is being exhibited – I am sooo excited!!!  I’ll tell you all about it in next weekend’s roundup.


13 thoughts on “Weekly roundup

  1. Coolncreative17

    I empathise with you darling. I suffer from severe migraines and it’s awful. That is so sad that you parent’s didn’t acknowledge your achievement. I believe in acknowledging every achievement no matter how small which is why I created AllheART (not sure if you’ve had a chance to check it out yet or not but I have invited you to my new website) so Congratulations on your distinction! Well done Jak. You should be proud of yourself.


    1. Jak Post author

      I do live on my own but will be going to my parents’ house for a few hours on Xmas day. My Mum’s an alcoholic though, so it’s not always a great experience and I’m often desperate to come back home!


  2. onesickvet

    I’ve been meaning to ask you – you mentioned in a previous post that you had a thick mattress topper that you liked quite a bit, and I’ve wished for more details. Of what is it filled (latex, wool, cotton, down)? And where did you get it (if you recall). Asking as I am awake in the middle of the night, again. Looking to relieve pressure points. Thanks! (And sorry to hear about your flare.)


    1. Jak Post author

      My topper is a 5″ feather and duck down, which is really comfortable but I’m not sure is particularly supportive. Sorry, I’ve had it for years so can’t remember where I bought it – possibly Dunelm Mill?

      Several of my severe ME friends have memory foam toppers and seem to like them.

      I also couldn’t manage without my 5ft U shaped maternity pillow – it’s that I tuck all round my body for support. Got it on Amazon.


      1. onesickvet

        Thanks for the reply, Jak. I have multiple medical conditions, and I haven’t found the right combination yet for a sufficient night’s sleep.



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