I seem to have had lots of new followers in the past couple of weeks, so “hi” and *waves* to you all, though why any of you want to listen to me rabbiting on is anyone’s guess 😉
The perfect weather, and my as-good-as-it-gets spell of better health, has continued this week and I’ve been doing way too much again. Monday a couple of old codgers from my Camera Club asked me if I wanted to go with them to the coast on a photography day out and, as it’s been twenty years since I went to the seaside, of course I said yes. I really enjoyed it and even though I didn’t take any brilliant photos it was still gorgeous to feel the salty, sea breeze on my skin.
Last week I had a phone call from the eye Consultant I saw recently at the hospital. She’d never heard of Ehlers-Danlos Syndrome so after she saw me the first time had researched it – I was gobsmacked that any Doctor cared that much, cos let’s face it most don’t. Having discovered the way it can affect the eyes she called me back on Weds to do a few more investigations (which were thankfully all fine) before referring me to a better hospital. I thanked her profusely for taking the time to look my disease up and it turned out that as she’d read about hEDS light bulbs had gone off for her daughter. So she quizzed me mercilessly on the symptoms of hEDS and I was happy to fill her in, after which she said she was going to have a word with the Rheumy at the hospital who I’ve seen and is knowledgeable on EDS. She was only a fairly young Doctor who had clearly had little or no training at medical school on EDS, so hopefully now she will talk to her colleagues about it and the word will continue to spread 🙂
I’ve had a couple of photos in mind which would only work if I wore a dramatic dress, so I’ve been bidding on eBay for second hand wedding dresses. I couldn’t believe my luck when this week I won a £3,000 couture ex-display dress, never worn, for £40. £40!!! So I spent an hour on Friday wrestling myself into it (quite hard to do a full lace-up corset on your own!) and taking pictures of myself in my spare bedroom wearing a long ginger wig. I was then able to cut myself out and make up a photo from other pictures I’d taken recently. It’s not often I love my photos but I’m chuffed with this one and might even print it off and put it on my wall 🙂
Editing my photos has been tortuous though as not only did I have a rumbling migraine which lasted for three days I’ve done something to the carpometacarpel joint and/or surrounding ligaments on my right hand. It’s one of the worst places to have an injury as I’m finding it impossible to immobilize. I’ve tried my thumb brace and my usual wrist brace but both allow too much movement of the joint 😦 Ideally I need to buddy tape my thumb to completely stop it moving but I have no clue how to do that – any Zebras out there with ideas?! This is the joint in question:
My bezzie mate is coming down this aft and we’re going to lounge by the river in the warm sunshine and put the world to rights, so I’m looking forward to that. First though I need a shower. I’ve been so busy using my energy for fun stuff this week I haven’t had any left for essentials, but now I smell and my hair is itchy so I have an urgent appointment with a flannel and some shampoo.