Weekly roundup

Hurrahhhh!!  I tried some Famotidine (H2 antihistamine) for my horrendous GERD and I am tolerating it OK 🙂  The agonizing pain in my acid-eaten stomach is slowly receding and my cough has totally gone (I still have pain in other parts of my abdomen but that’s from separate issues).  You have no idea the relief.  I know that eventually my mast cells will reject the drug (I tolerated Zantac/cimetidine for over a year before my body revolted) but for now I’m just enjoying having a break from the torture.

I decided I no longer need to see my Counsellor.  The anger I’ve felt towards my Mum and her alcoholism for the past few years no longer threatens to overwhelm me and I feel more like I’m swimming again rather than drowning.  The situation hasn’t altered, but in talking it through I hope my response to it has.

I was pissed to see the Low Histamine Chef’s transcript to a recent podcast with Abel James say that meditation can help Chronic Fatigue Syndrome.   Firstly, where are her medical qualifications and secondly she does not have M.E. and I resent hugely her talking about a disease she clearly has no knowledge of.  I’m sure meditation is helpful in calming the mind and helping with stress whether you’re healthy or sick, but for her to talk about it helping specific diseases is reckless.  I was bedridden with M.E. for nearly 10 years.  I was unable to open my eyelids, chew solid food or speak for some of that time.  I spent virtually every waking moment in my head because I could barely physically move.  Trust me when I say meditation did not help any of my symptoms.  In fact I tried gentle yoga breathing, in through the nose and out through the mouth, for 10 minutes a day for two weeks and ended up so ill I was in the Neurological Rehab Unit of my local hospital for nearly a month.  You also cannot cure M.E. by anything you eat and if you do you did not have M.E. to start with. Don’t forget that many health gurus online, most of whom possess no medical qualifications and are not registered dieticians, make a shed load of money from telling people how to treat incurable diseases through diet and we believe them because we’re desperate.

The post office have buggered up my entire weekend.  I want to decorate my hall.  Everything is ready and I’d arranged for a friend to come and roller the walls this weekend while I did the skirtings.  The paint I needed was out of stock at my local B&Q so I had to order it online, paying for it to be delivered on Friday.  I waited all day as deliveries can be any time from 8am to 6pm but when it hadn’t arrived by 5.30pm I decided to ring B&Q to check it was coming.  According to their records, the post office had attempted delivery at 10.30am that morning but I hadn’t been in and they had taken it back to the depot.  I was livid.  No-one had been to my house and even if they had and I just hadn’t heard them (not likely when you own a dog who barks like a lunatic at anyone who dares to open our garden gate) no card had been put through my door.  B&Q tried ringing Parcelforce to redeliver on Saturday only of course they were closed, so my plans are totally scuppered.  Everything out of the hall is in the lounge, and there is masking tape all over the hall floor, which means my cleaner won’t be able to do her job on Wednesday (the whole point of doing the decorating this weekend was that it would be finished by Weds!).  I know it’s not the end of the world, but when you’re ill and have very limited energy doing something like decorating a room is a huge undertaking, which you only barely cope with if everything goes right.  So when it goes wrong it all just seems too much.

From comments on my last blog post it appears my American friends need a dictionary in order to understand the way I ‘speak’, even though it’s English (there is no such thing as American English, there is just English which you lot in the States have butchered! 😉 )  I suspect most Americans think that all English people speak like the Queen, or Julie Andrews in Mary Poppins, not realizing that accent died out in the 1950s.  The next dialect recognized by Americans is Cockney however this is only spoken in some parts of London and not by 90% of the rest of the country.  Like America, where Texans speak differently to New Yorkers, England has hundreds of regional accents and dialects and massive variations between the North and the South – you can listen to some of the regional variations here (only listen to the first few minutes, after that he wanders off all over the world).  Cumbrian is a mix of old Celtic and old Nordic (we were invaded by the Scots, the Romans and the Vikings, who all settled here) and very traditional Cumbrian actually doesn’t sound like English at all (listen to this clip the speech starts at 20 seconds and this clip)  Now aren’t you grateful I don’t type in my local dialect? 😉   We even traditionally have our own counting system, you can have a listen here.  Apart from Farmers, however, most Cumbrians speak with a more modern dialect you’ll be pleased to hear, even though young people pepper the end of every sentence with…….like, eh!

For anyone who doesn’t know where Cumbria is, below is a map of the British Isles.  We are the 2nd largest County in England, though one of the most sparsely populated.  We are the last county in the North West before Scotland and lie approx 100 miles north of Manchester and 300 miles north of London.

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3 thoughts on “Weekly roundup

  1. d

    Yay! So glad you are getting some relief : ) I hope it lasts and lasts.

    I agree with you about the Histamine Chef – it’s completely irresponsible to make recommendations on how to treat chronic illness when you are not a practicing professional in the medical realm who has experience with that illness. By medical realm I mean physicians and researchers as well as allied health professionals (ditietians, physiotherapists, etc.). These groups are formally trained, regulated by colleges in many instances, and bound by codes of ethics. Never mistake personal experience for medical advice – there is so much we do not know, and I very much appreciate that you have never gone that route. You have established your own code of ethics.

    I hope your paint does arrive, it’s so irritating when the best laid plans are cast aside by the weak link in the chain.

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    1. Jak Post author

      Thanks d. Some people have actually gotten arsy with me when they ask on my blog if I think they have MCAD or EDS or whatever and I just say “I’m not a doctor and I don’t know you so I’m sorry but I can’t comment”. Why would you ask a total stranger online about your health instead of finding a specialist doctor? Same with diet. I always make sure I say that my diet is personal to me and works for me but I can’t say it will be suitable for anyone else. And I make no money out of advertising or recipes – I don’t want financial gain to cloud the reasons for writing a blog, which is solely to share my story in the hope it resonates with other people x

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  2. Karen, The Walking Allergy

    I have no issue with a non-expert saying something- but it is essential to be clear about what level of ‘certainty’ people are speaking about, and their source.

    The lack of understanding about meditation is a pet peeve for me. The purpose of mindfulness meditation is NOT to reduce your symptoms or treat your disease…. it is to minimize the damage on the body done by physiological stress. (My source us the original book ‘Full catastrophe living’.). For me, it helps me move my body back from ‘instinct’ into ‘rational’ (sympathetic to parasympathetic). We need that instinctive fight or flight, but because I am (used to be😱) in a constant anaphylactic state, if I didn’t know how to bring that down quickly, my body would be in so much worse shape than it is. In fact, my body is healthy enough that a lot of doctors can’t wrap their heads around the dichotomy of how hellish my mast cells are, but how ‘undamaged’ most of my organs are. My mother learned mindfulness when I was a toddler. I’ve been doing it my whole life, and I didn’t even know it… I’ve been playing a bit lately, and I can move my heart rate down or up 20 beats per minute, if both my body and mind are in relative balance, and I am in a purposeful meditative state. Takes about 30 minutes (although 3/4 of the time I fall asleep! 🤣). And yes, doctors have asserted that because I have some control over my heart rate and BP that I am ‘exaggerating’ a mild physiological response (either purposefully or subconsciously). Not even the best yogi in India can make his heart stop… I read somewhere that the best they could achieve was 12 beats per minute. I’m amazing, but, no, I can’t take my heart rate from 120 to zero in under two minutes…

    As for the accents- I had a binge watch of ‘Call the Midwife’ in the last few weeks. All of a sudden I am talking like ‘Chummy’, who has an impeccable ‘expensive education’ accent. 🤔One does rather wonder why I clamped onto her, but clearly that is precisely what happened! I’ve had to be ever so vigilant to look for it in my writing; some American will think I’m putting on airs. Thank heavens her character is completely at odds with her accent. She’s built like an Amazon, but has a heart bigger than you can imagine. 😂

    Must run. The peasants are getting restless…

    Karen.

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