My little autumnal blip seems to be stabilizing, though I’m not anywhere near as good as I was in the nice weather. The good news is that my brain fog has lifted (I’m always foggy headed, but at least now I don’t feel like I’m drugged) and I don’t feel as fluey and achy. My energy levels are also better, if not brilliant. The bad news is I’ve had a run of stonking headaches/migraines, my pain levels are still high (my hip is getting much worse) and I’m still not sleeping.
Despite everything I’ve had another busy week, but at least it was self-inflicted (for the most part). Monday I had my long-awaited appointment with the Oral Surgeon regarding my sub-luxing jaw and TMJ pain. He’s suggested trying a mouth guard on my bottom teeth at night, which I know won’t do a shite of good. However, I have to try it if only to tell him it’s not done a shite of good. I go back to see him in February for a follow-up. I know the answer is actually some kind of mouth guard, but it’s going to have to be custom made and somehow fused top and bottom to stop my jaw slipping into my earhole as I sleep! He was actually a really nice Consultant though, and was mortified I hadn’t been under the care of a Rheumatologist since my Ehlers-Danlos was diagnosed back in 2010! He’s going to write to my GP and strongly suggest I see someone locally. The other thing he was horrified to discover is that I don’t have an epi-pen, despite my almost total drug allergies and history of reactions after food. He suggested I tackle my GP about this, though I feel it should have come from Dr Seneviratne when he wrote to my GP last year.
Tuesday evening I attended a 2 hour beginners workshop run by my local camera club, and Wednesday evening was the weekly camera club meeting. Oh boy do I struggle to do things in the evening, let alone two evenings on the trot, but I was still glad I made it even though four days on I’m still suffering the consequences.
Yesterday (Saturday) I also attended a 2 hour workshop on how to mount photographic prints. This coming Wednesday I enter my first camera club print competition and there are strict rules on how entries can be submitted. There are 6 competitions in all over the year and the person scoring highest in their class gets promoted to the next class up. Here are my two entries – wish me luck!
Today my friend K is coming over and we’re going out for lunch. She’s been chocka with cold for weeks now and it feels like forever since we’ve had a natter, so I’m looking forward to that 🙂 I then really need to rest this week (well, apart from my Dad’s hernia operation on Tuesday and my physio appt on Wednesday for my hip,) so that I have enough energy to get to the EDS conference next weekend. Who am I kidding? My Mum can’t do a thing, and following surgery I’m fairly sure my Dad will also be laid up, so I will be on Daughter duty the entire time. Not that I mind, because Bertie has practically lived at their house this week while I’ve been gallivanting, as well as staying there overnight if I ever do make it to Birmingham. He loves being at his Nanna and Granda’s because they eat meat and give him all sorts of treats off their dinner plate which he never gets off his vegetarian Mum. It’s a wonder he ever wants to come home 😉 .