Sadly my amazing energy patch from last week has done a bunk. I’ve had the landing painted but there is only one coat on the halls walls and the project has been abandoned as I can’t cope. I did ask the Painting Fairy to finish it off while I slept but did she? No! The lazy mare probably sat all night eating Haagen-Dazs and watching Sky telly. You just can’t get the staff these days 😉
I felt so well last week I did actually wonder if I was coming down with something. Bizarrely I always feel super well just before I get a cold, or a throat infection, or some other kind of bug. This is before I have any symptoms of having a bug you understand – I feel as sick as everyone else once the virus takes hold. Obviously my immune system acts differently when faced with a viral infection and maybe it either switches on correctly and starts to act normally, or diverts from its ME and Mast Cell dysfunction in order to fight the infection, but something definitely changes.
For the 5 days following my inoculations to visit Africa in 1996 I felt almost normal. Literally overnight I recovered by about 80%. I had energy, no brain fog, I could sit and stand without wanting to pass out, my muscles stopped hurting, the fluey symptoms disappeared, I slept through the night……..it was nothing short of miraculous. All that had happened was my immune system was galvanized into action in order to produce antibodies and my ME virtually disappeared.
This, to me, proves that M.E. is a physical disease. There is nothing psychological about it in any way. It is not down to eating grains, or salicylates, or gluten, or dairy or any other kind of food because my diet didn’t change one iota. It’s not down to stress or thyroid or cortisol or any other hormone abnormality. It’s not a rogue virus like XMRV or borrelia, because if it were having a vaccination wouldn’t alter the situation. It’s actually not even a neurological disease, despite the WHO classification, because my neurological status hadn’t changed. It’s a primary immune disorder, which affects the brain, nervous system, hormones and other bodily functions: at least that’s been my experience. There’s a reason the majority of people go down with M.E. following vaccination or some kind of infection in which only the immune system is involved (as you know, I personally suspect mast cell activation of some kind as the key).
Post-bug is a whole other kettle of fish. I’m always really, really ill following any kind of infection and it can take weeks, sometimes months (and in the case of my vaccination-induced meningitis 10 years) to get over the onslaught. Every time I get a bug I do wonder if this will be the time my immune system will simply go back to normal afterwards, instead of getting stuck back into its M.E. and Mast Cell dysfunction, but to date I’ve not been that lucky.
From what other M.E. sufferers have said to me I think I’m fairly unique in my response to pre-infection and I don’t know anyone else that has this weird ‘normal’ feeling just before they get sick. The times, like last week, when I have a few exceptionally good days I’m now quite suspicious that I’m about to get some raging infection, so I make the most of feeling amazingly well by doing all the housy jobs that don’t get done any other time! I’m going to get sick anyway, so I might as well take advantage of the silver lining to the suspected oncoming black cloud 😉 .
Of course, I sometimes forget I also have EDS and that going berserk doing anything physical isn’t something that should ever cross my mind. It kills my hands. And my wrists. And my elbows. And my shoulders. And my back. And my knees. And my ankles. And especially my neck. The next time I have a good patch and mention getting out of my pyjamas and into normal gear to do something round the house someone feel free to tie me to a tree until I’m back to being knackered!