Sooo, my butt is doing something different this week just in case I was getting bored. I woke up to a blistery blob about the size of a 10p, which both stings and itches and looks a bit like nettle rash. I’m now convinced more than ever that the blisters I’ve been getting on my torso definitely aren’t bug bites but are some kind of mast cell reaction. I’ve tried steroid cream on it (not helping), anti-histamine cream on it (also not helping) and tea tree cream on it (not helping either!). It just gets bigger and redder by the day. Odd! My hives are also still in full outbreak. No sooner does one patch start to fade another one takes its place. Apart from being itchy they don’t bother me though, so it’s not like I worry about them. I’m just thankful all these things are on my backside and not somewhere visible like my face.
I now have a date to go back down to London for my MCAD test results: 19th November. I’m both excited I will finally get diagnosed and terrified they’ll find nothing. I couldn’t have been more symptomatic, with an outbreak of hives and sneezing my head off, so if the tests are negative I don’t know where I’ll go from there. However, I was really concerned about the way the tests were carried out. The man who did them barely spoke English, and I was under the impression that the chilled blood and urine in particular were supposed to be put straight in the fridge as histamine can start to de-grade after only 15 seconds at room temperature. Not only was this not done, the samples that were supposed to be immediately frozen were still in a bag in his hand after I’d paid the bill and was leaving the building. If the results are negative I’ll be querying this in a big way, considering the tests and train fare cost me nearly £500!
I really should stop boasting when things are going well, because the Gods are always listening! My ‘good’ EDS patch seems to be on the wane, as my left ankle is currently strapped up due to ligament pain. I’ve no idea what I’ve done to cause the pain, could just be the change in weather, but I’m now doing my Hop-a-long-Cassidy routine and walking like a constipated duck. My little Schnauzer, Bertie, is also limping and has had intermittent lameness since I first adopted him 2½ years ago. The vet is unsure of the cause, so he’s currently being monitored and might have to go in for some x-rays. Did you know that dogs can have EDS? No, me neither! Maybe we’re coming out in sympathy with each other 😉
As we’re nearly into November I’m reluctantly starting to think about Christmas (wash your mouth out with soapy water woman! 😉 ). There’s nothing worse than sitting watching the rest of your family tucking into the Celebrations and mince pies, while you’re stuck with yet another piece of boring Shortbread. So I decided to investigate making some fudge (see the recipe page and scroll down) to indulge in over the festive period. I have to say it’s absolutely delicious and better than anything I’ve bought in a shop. Bertie thought so too, as I discovered when he nicked the tub off the table while my back was turned and scoffed the lot. He then spent 2 hours being sick, groaning, and going round in circles with his eyes on stalks from the sugar rush. Serves him right!