Over the last 10 years my skin has started doing all sorts of weird things. Despite this, when I was being investigated for Mastocytosis in June my skin was never once examined. It seems that, according to the NHS, if your tryptase level is normal you can’t possibly have any kind of mast cell disorder. Which would be fine, if only it were true. Cutaneous Mastocytosis doesn’t involve elevated tryptase. Neither does TMEP (Telangiectasia macularis eruptiva perstans). And neither does Mast Cell Activation Disorder.
I currently have 9 blood blisters on my skin. They’re all on my chest and stomach, nowhere else. They’re only small and don’t come and go – I’ve had some of them for years. But what they are doing is increasing. Here are some photos:
Another thing that puzzles me about my skin is that brown looking weird rash you can see on the photo on the right. My whole chest looks like that. Maybe it’s just sun damage, which might be plausible if I’d been abroad any time in the last 17 years (which I haven’t) and didn’t live in the far north west of England where it rains 340 days out of every 365! Trust me when I say sun-block isn’t something the local shops sell a lot of 😉 .
I don’t think sun damage can be blamed for my ever increasing freckles either, some of which are quite big. Here’s a photo of one on my neck that I’ve had since I was a baby – I have a similar one on my side:
And here’s a photo of the top of my back – again you can see clumping of ‘freckles’ into quite large areas of pigmented skin.
My moles also seem to be increasing at an alarming rate of knots, and I have 2 on my back that sting if I rub them, a bit like the sting you get from nettle rash.
And then, of course, there are my much talked about bug blisters that I don’t think are bug bites at all (I have yet another one under my boob this week, and it’s autumn here and I only ever go outside fully kitted out in jeans, polo-neck sweater and anorak!).
Maybe all this is perfectly normal in a middle aged woman, which is what I constantly tell myself along with the mantra to “stop bloody fussing”! I’d be more inclined to listen to myself if my skin didn’t itch quite so much and I wasn’t covered in welts from all the scratching. You do have to wonder what’s really going on, and I’ll be broaching the lack of skin examination with Dr Seneviratne when I see him for my follow-up appointment next month.