We’re having a mini heat-wave here in the UK – about time too, as last year my garden furniture didn’t even see the light of day. I know many people with M.E., POTS, Ehlers-Danlos and Mast Cell Disease feel extra poorly in hot weather but me, I’m like a new woman. My energy levels are up, my pain levels are down and I’m sleeping really well (aided by my trusty ceiling fan to keep me cool). However, wearing hardly any clothes does have its disadvantages, as every biting insect in a hundred mile radius seems to make a bee line for my bare flesh. I’m surrounded by woodland and walk my little dog there in the hot weather as it’s shady and cool. I usually take precautions against ticks in particular by wearing long leggings tucked into knee length socks and tramp along in 35 degrees of heat sweating like a roasting hog, but yesterday I forgot to put some long socks in the car and, wanting to walk Bertie on my way home from town, took a chance and set off in my shorts. Not my brightest ever idea because I woke this morning with a 2″ wide blistery, red lump caused, I assume, by some hungry little critter who treated my calf like it was an all-you-can-eat buffet. My mast cells are having a field day, hydrocortisone cream isn’t touching the sides and it’s so itchy I might have to resort to oven gloves to stop myself from scratching.
The sunny weather means I can take my skirts and dresses out of mothballs and try to be at least a little bit girlie for a few short weeks each year (the rest of the time I live in my wellies and waterproofs). But add the lump to the 11 Ehlers-Danlos related bruises of unknown origin I also woke with this morning and my battered legs, poking out beneath a frill of creamy lace, look about as un-ladylike as it gets. Rather, I look like I have a kick-boxing fetish or I’ve been in a pub fight and lost 😉 . I bet I don’t forget my socks again in a hurry.
My mast cell appointment at Preston was 3½ weeks ago and I’m still waiting for my tryptase results. How long can one measly little blood test take??! It’s now seriously cheesing me off, because my GP won’t refer me to Manchester for a second opinion until she hears from Preston and can put the results in the new referral letter. Add to that the new consultant only works 2 days a week and I might not get a new appointment this side of Christmas .
Before I close I’ve just time to say that I’ve added a lunch-time (or supper time!) recipe for Roasted Veg Wraps to the site (see the Recipe Page and scroll down). Scrummy!