I’ve waited 6 weeks for the ultrasound scan on my ovarian cyst. It took place in town at 9am, then I had to leg it through to the city to see the Gynaecologist for 11am – just the way the appointments had worked out. As you all know, I’d been told I had a simple, fluid filled cyst so was expecting that to be confirmed via ultrasound, only it didn’t quite work out that way.
I had both an abdominal and a trans-vaginal scan which confirmed I actually have a complex septated cyst, which hadn’t shown on the MRI. A septated cyst is one which has divided into more than one part – mine has one side filled with clear fluid, but the other side has a thicker wall and what looks like blood in the middle. She said it didn’t look like an endometrial cyst, but didn’t go on to say exactly what it did look like. Complex septated cysts are the most painful to have (tell me something I don’t know!) and also the most likely to be cancerous.
When I saw the Gynae I also discovered my CA125 blood test, used as a tumour indicator, was 112 – normal is below 35. The test doesn’t necessarily indicate cancer and can be raised for any number of reasons, including peri-menopause (check), endometriosis (suspected check), inflammatory diseases (check), but alongside a complex cyst it’s a cause for concern.
I am definitely having the cyst removed and have been bumped up the waiting list. In the meantime, there is a centre of excellence for gynae care over in Newcastle so my Consultant will liaise with them as to the best way forward bearing in mind my Ehlers-Danlos and absolute allergy to all things drug-related. I can have the surgery via epidural as they are cutting me open not doing keyhole, but I’m unsure how they’re going to manage my pain afterwards. I will then be out of action for at least 6 weeks, which with my poor wound healing history could mean 4 months. How the fuck I’m going to manage is anyone’s guess.
I was expecting a fairly routine appointment yesterday so all this came as a bit of a shock and I’m still processing it. I’ll probably do my usual burying-head-in-sand routine until the day of the op. Worrying doesn’t help the situation one iota.
I’ve only had 90 minutes sleep. Not due to stressing over yesterday, but due to horrendous period and back pain which I simply couldn’t sleep through. At about 4am I did think it a tad unfair that, after the day I’d had, my body wasn’t allowing me some kip. While I’m under the knife I do feel like telling the surgeon to just whip my freakin womb out while he’s at it and at least the monthly torture would be over with.
Speaking of my womb, the sonographer also discovered I have fibroids. So I now have them in my stomach, my bowel and my uterus. Every time someone looks inside my body they find something else wrong with it! No idea if they contribute to my god-awful period pain and they’re apparently not a cause for concern being as though my periods aren’t particularly heavy.
Sooooo, it’s now just a waiting game for a surgery date. In the meantime I’ll have to get my chef hat on and stock up the freezer with meals.